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How long will withdrawl last

by too blue, Apr 15, 2003 12:00AM
I have been lurking here a few weeks and finally decided to jump in after reading Rob's story.  One thing I would like to ask Rob is given the high dose he was on has he had any problem with his liver or kidneys?



A little about me.  I fell off a horse when I was 33 and tore up my back and hip really bad.  Lots of P/T to walk right again.  During all that mess they discoved I had Ankylosing Spondylitis and that it was contributing to why my bones were not healing any faster.  During this time they pressed pain pills on me by the handfuls.  I had never taken anything but the occasional asperin or ever had any pain for that matter.  After 1989 that all changed and my life has never been the same.  I am now on disability and fight bouts of depression as well as chronic pain.  Currently I am on Welbutrin and Lortab.  I take 2 500's every four hours around the clock.  That is 12 pills a day.  It bothers me a lot, but my doctor says that I am not an addict.  I know this is wrong because I have tried to skip doses and I get pain all over my body and the runs.  I know it would only get worse.  He says I am simply dependent on them and there is a difference.  I don't see it.  If that doctor cut me off looks to me like I would be shivering in the shower like addict movies I have seen.  I worry all the time about my liver and kidneys and sometimes my tests come back a little elevated an he says nothing to worry about.  The pain meds hold my pain at bay most of the time but I am so tired all the time.  I want to stop but I will have to do it without my doctors help.  I am so scared.
Member Comments (29)

by too blue, Apr 15, 2003 12:00AM
I guess I did not do something right.  I thought I was posting to the question asked by Roxy30mg.  I was referring to RStew's generous comments.  I guess it takes a minute to learn how the board works.  Now I can see I should have posted a comment to their thread, did not see that button.  OH WELL!

by too blue, Apr 15, 2003 12:00AM
Another concern?  I have gotten so scared reading about all the withdrawls.  I am a long time user.  Since '96.  Of course I started out a 1-4x a day.  Each year a few pills a week were added on as my tolerance grew.  I don't get any high from these pills.  Unless you consider it a high in the relief you get when your hip stops hurting and you can get moving again.  When I have really bad spells he has me take 2 and then 1 hour later take 2 more.  I have never been one to need to take 4 or 5 at one time.  As my doctor says, if two don't kill the pain you are doing to much, and it's time to lie down.  So it goes.  The biggest problem is that if I tell my doctor I am quitting them there is nothing he can do.  But if I fail I know he will start me right back up again.  My activities will be cut in half without pain pills.  I don't know how strong I will be when I have a long pain day and know all I have to do is pick up the phone.  It kills me to think that I take 375 500/Lortabs a month.  I feel like such a loser that I need that much to get through the day.  I worry and worry how my liver can take it.  The doctor says my general health is good, my weight in check and I don't drink or smoke.  Is that enough to protect me?  I am just so tired, so tired of dealing with all of this.  Please will someone respond.....I thank you for the comfort I have found here reading your stories.

by percsnomas, Apr 15, 2003 12:00AM
To: too blue
Hello and welcome here!!!



Notwithstanding some very good points made by our good Doc(as usual)., my reaction to your doctors "dependent VS addicted", is the same as it was when my doctor said it to me........Bullshit.  If it doesn't serve as a defense mechanism for him/her covering their ass, i don't know what is.  I still remember standing in my docs office having that exact conversation last Aug. 19th(the day of my last pill), and being amazed that my life-long friend/doc. was now trying to "package up"/argue my situation.  I kept saying, "It's not your fault that i'm addicted" He cringed every time i said the word addicted, and continually substituted dependent when i said addicted...........

You have a lot of concerns/questions, so i hope i cover some of them.

Switching meds to something longer lasting(and without tylenol) would certainly seem a reasonable possibility, considering the pain you experience and the need to take doses every 4-5 hours.

Although the liver is a surprisingly resilient organ, and one that regenerates itself; exceeding 4 grams of tylenol/ day, day after day, is asking for trouble.  And agreed, that although elevated numbers on your bloodwork, may not necessarily indicate damage, it certainly could be heading there. A very good friend of mine(healthy 32 year old male) was recently hit by a virus, that knocked him down, and resulted in his liver and kidneys to stop functioning.  He remained on dialysis for 1 week, and slowly regained his liver function and lastly his kidney function. The final consensus(from an entire team of doctors) was that his continual useage of percocet, due to back problems(with up to 6-8 grams of tylenol/day) for years , was "likely" the cause of his organs failing.(not the virus itself) I certainly am no doctor, so i can't argue the specifics; all i know is i saw this great big tube(with 2 or 3 tubes in it) sticking out of the base of his neck, and the most terrified look on his face......i won't forget it!! Please know, i'm not trying to scare you either, I just think it is a lit'l dangerous of your doctor to dismiss the concerns cause the numbers are only a lit'l high.

If nothing else, i wonder if your doc would think it a good idea to pick up some Milk Thistle,



After being at this site for about 9 months, I can pass on that your 12 pills/day for 6 + years could fall into a "normalish" range.  OF COURSE, some use less, and some more...........i was up to 20+ percs/day for several years, and continually felt like the biggest/guiltiest piece of **** for doing so. My tolerance just kept building after my first back surgery in '96 until my last one in '02.



Being afraid of the withdrawals(if quitting is what you decide) is something we talk about here all the time.  I was scared to death, so i tapered of my meds (over a 2 week period), which was too fast, but i really wanted to try and stop, and had my last pill Aug. 19th.  Frequently the fear exceeds the execution, but it is still is a *****.  BUT WELL WORTH IT!!!



Yours is a tricky situation, like many; just know we're here for you in whatever capacity you want.  There are a great deal of compassionate and supportive people that know what you have been and are going through.



percs

by too blue, Apr 15, 2003 12:00AM
Thank you so much for the insightful comments.  I wanted to backtract and say thatI was not criticizing my doctor.  He has done his best to take care and give me the most active life I can have.  This has just been a very bad winter, the AS went wild, my anti-d seems to have pooped out on me so he tried me on Remeron.  I felt better immediately and had so much more energy but then I swelled up like a blowfish and that drove my BP up. So things are in flux and yes, when I get depressed I feel pain in places that aren't even hurt and my anxiety makes the slightest stabs seem unbearable.  Bad circle to get into.  The reason I want off the Lortab is I have heard that IT depresses you.  When I talk to my doctor about this he jokes and says I have been nothing but trouble since I got a computer!  As far as the AS meds, all I have tried work like a miracle drug and then 60 days into it I am bleeding at both ends.  I can't believe I am whining on and on here, but I am just at the end of my rope.  I have many suicidal thoughts but know that is not an option whatsoever. I will never take that out as I have people who it would break their heart.  But as for me?  I just really want to lay it down.  I have fought with this, then accepted it, then cooperated with it and made the best of it.  But now I am just so so tired of the cycles.  Yes, this one will finally pass.  I will get through the side effects while we play guinea pig to find me a different anti-D.  Yes, I see a therapist about the depression that seems to come every winter.  What more can I do?  It's not worth it anymore.  But I have to go on.  No other option.  That is the worst of it:  trapped

by too blue, Apr 15, 2003 12:00AM
To: Percs
Thank you too, for your comments.  I agree that both out doctors are splitting hairs not admitting that we are addicted to pain pills.  If you take me and the guy on the street drugs and let us withdraw I bet you can't tell a bit of difference between the addict and the "medically dependent" one.  I too feel such shame every time I go into the pharmacy and pick up 100 pill.  Here my doctor says that I would not feel bad if I was picking up insulin would I?  But that's different to me.  Maybe I would not be taking so much pills if I wasn't such a wussy.  Or was tougher.  So many anxieties over the whole mess.  They say addicts hide their use.  Well, I may pick mine up in the bright shiny pharmacy but you can bet I have not told a single one of my friends how much medication I am on. So what is the difference.  I am deeply ashamed of my whole condition.  I just try not to think about it and get on with it.  Your friends virus episode gave me something new to worry about.  I have thought how embarrassing it would be if I get liver failure and it is something that I did to myself.  More shame.



Congratulations on quitting.  But I am wondering what you do about your back pain now.  Are you able to get up and do normal activities?  Quitting will so narrow my world down that I can't even stand to think of it yet.

by RStew, Apr 15, 2003 12:00AM
To: tooblue
It's Rob, tooblue. I've been out for a couple days and I haven't had a chance to post. It's been beautiful here in Michigan and I'm trying to enjoy the weather! :-)



In regards to your question, the answer is, I don't really know. I have had quite a few days where I felt as if I was peeing thick orange soup (sorry for the visual) but my kidney function has been fine recently. As for my liver, my doctor did blood work last year and asked me if I had been drinking more than usual recently (I told him, yea) he said it was nothing to be alarmed about but that I should slow down a bit (little did he know that I haven't drank a drop in 10 years.)



I probably did some damage...But I am hoping that staying clean will allow my body to heal itself.



Hang in there, blue...whenever you need to talk, we are all here!



All my best! Rob

by too blue, Apr 15, 2003 12:00AM
To: Rob
Thank you for the reassurance that you may have come through unscathed.  I take a bit less than you did so maybe I will be ok.  That story where the guy got the virus and then everything shut down.  Wow!  Really wish I did not have that visual to chew on today.  I really think I am just going to start tapering back slowly myself.  It might not be the best time since my depression meds are haywire but hey if I can even cut down one pill a day.  In my situation my doctor says to take it regularly as my pain is fairly severe.  His idea is not to let the pain get that severe but to stay ahead of it all the time with timed doses.  The thing I tell him is that there really are days when the pain level is down and I could go without meds all day and just take them as it gets bad at days end.  But now that I am on this 4 hour dosing schedule if I miss a does I get pain that I can live with but I get all nervous and jittery feeling too.  That's the part that  makes me feel like such an addict.  But if the pain is less then I just take 1 pill instead of 2 so I figure I helped my liver that day.  I am so sorry to rattle on and on about this but I do not discuss my health problems with anyone, ever.  Suddenly I feel like if I don't talk about it I am just going to lose it for good.  By that I mean people who are actually in the same boat, not the doctor or the therapist.  Believe me, I have been forced to avail myself of all the medical profession has to offer or I would have put myself down like the horse that started this whole nightmare.  And after all this whining, I feel I should point out that I have months and seasons that I do better and life is satisfying and I don't whine hours on end.  Limited, but I do eke out my little pleasures and I have good friends. And I do have a great sense of humor.  I am not just my meds.  Unfortunately, my health is a taboo issue to me, so I don't go to my friends for the support I would be able to have. And I ask them not to ask me how I am doing all the time. I just can't stand people knowing about it.  Shame, so much shame.  No matter how many times people tell you that you don't have to be ashamed of being ill of injured....well they just haven't been there.  When I finally faced my inability to work anymore, going on disability was the worst thing I have ever had to do.  Some people are very irritated to know their tax dollars are paying someone else's way.  When people make comments about must be nice to get a free ride, I always tell them I will trade them their job and healthy body for my body and my $600.00 a month free ride.  A bit difficult to do much with that amount of money.  My most basic needs are met but believe me I am not jetting over to Hawaii for the winter.  I am just grateful the safety net was there or I would be living