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Incontinentia Pigmenti Community

This patient support community is for discussions relating to incontinentia pigment, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.
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Discussions
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4

Gene Mutation...

by Bbswimgrl, Nov 12, 2008 09:29PM
I was the first person diagnosed with IP, although it is believe my Gre...
1

Are there any other Californians with i.p? ?

by appleblossom7, Nov 14, 2008 03:04AM
Hello Ip family. We live on the central coast of California near a smal...
1

Discoloration

by ktowndana, Nov 21, 2008 10:40PM
I have read that the patchy like coloring will fade as you get into adu...
1

teeth

by Rachaels_mom, Nov 22, 2008 08:44PM
My daughter Rachael is only 4 months old so there are no sign of teeth ...
2

teeth issues

by DNV, Nov 18, 2008 03:29PM
Hi, my daughter has IP and i know that one of the main issues with IP i...
2

Seizures and IP

by Laylasmom, Nov 22, 2008 01:02PM
When my daughter was a few days old she started having seizures, they g...

purple foot

by nori15, Nov 30, 2008 05:41AM
I deny tauma to my foot. 2 days ago it was painful to touch then the f...
3

no teeth yet

by DNV, Sep 08, 2008 10:29AM
my daugther is 9 months and she still has not shown any sign of teeth. ...
4

Male infant with IP

by babechristian, Nov 09, 2008 12:45PM
My grandson has had preliminary diagnosis that he has IP. He was born w...

uneven skin color

by sumaiya, Nov 12, 2008 12:55PM
Hi doctor, I am a 24 year old student, i have recently n...
3

Muscle Spasms

by sunshine4u1972, Aug 10, 2008 10:27PM
Does anybody know if the muscle spasms associated with IP can be a long...
6

IP

by DNV, Jun 27, 2008 07:58PM
I would love to hear from other parents who's children have IP. My daug...
3

Dentures

by palmetto25, Aug 19, 2008 03:01PM
Our dentist said that our daughter could get dentures at age four and t...

white patch

by cancerrain, Nov 10, 2008 06:33AM
Dear sir, Could you please tell me regarding occurence of light white ...
1

why mri

by mono87, Oct 29, 2008 06:40AM
twice now i heard of babies with ip getting mri why is this? what are t...
2

Specialists

by niter80, Oct 28, 2008 05:44PM
My nerves are about shot after going to see several specialist and bein...
1

dark areas on skin

by free2rhyme4lyfe, Oct 28, 2008 09:44PM
okay so i have this small dark area (i think its called skin pigmentati...
2

Doctor Help

by Maddys_Mom, Sep 21, 2008 03:36PM
The dermatologist that dx my daughter with IP has never seen it before ...
1

teeth problems?????

by mono87, Oct 25, 2008 06:14AM
Hi i was just wondering 2 things i have ip and have no major teeth prob...
1

white spots on gum

by midgxx2, Oct 23, 2008 01:49PM
What could be the cause of white unraised spots on my daughters gum.
1

telling your children about their disease

by sarad236, Oct 18, 2008 08:06PM
Any advice about what age to tell your daughter she has the disease?
1

dr said, my baby has hypomelanosis of ito

by eveesmom, Oct 13, 2008 01:51PM
My dr said my baby has hypomelanosis of ito. I was told not to worry ab...
1

IP very worried

by mono87, Oct 14, 2008 05:38AM
Hi there just wanting as much help as i can get i am 21 and have ip how...
4

Multiple Miscarrage

by Moosespb, Apr 16, 2008 08:10PM
Anyone here had multi miscarrages related to IP or at least feel that t...
6

family planning

by smashrck, Jun 30, 2008 01:00PM
I am 26 and I have IP. I was diagnosed at birth, due to the rashes. My ...
2

Starting a Family with IP

by KDomo, Sep 27, 2008 04:45AM
Hi there, I am 25 years old and i love in Australia. I have IP. My h...
1

can someone help

by meljp, Oct 09, 2008 12:38PM
im pregnant 3-5 weeks gone so far when is the earliest date i can see i...

Parents of Older Children w/IP

by MommaBran, Oct 04, 2008 11:20AM
My daughter will be 9 in January. She was born in 2000 and then, there ...
2

Dark patches on knees

by Isch, Jun 30, 2008 04:05PM
Since giving birth to my son 9 months ago, I have in the last month to...
3

I am so glad I found you all! I have lots to ask about!

by Rachaels_mom, Sep 14, 2008 08:56PM
I'll try to not ask too many questins at once. My daughter Rachael is a...
2

seizures?

by Rachaels_mom, Sep 18, 2008 09:16AM
What signs should i be looking for if my daughter was to have a seizure...
2

Seizure

by Maddys_Mom, Sep 23, 2008 04:48PM
Is there anything you can do in the middle of a seizure if you know tha...
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