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Hepatitis Social Community
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energy for work
by Ruth590, Nov 29, 2008 07:09PM
Hello everyone, I hope you all had a great Thanksgiving.I am pretty new to the forum, my husband has been on treatment for about 77 weeks now. He had a liver transplant March 2006. I was wondering how you are able to get up and go to work. My husband is up most of the night and sleeps alot during the day. He is on ad for depression and his on sleep meds but he only sleeps a couple of hours a night. He wants to g back but I don't know if he can.we will see his doctor dec. 10 so we'll know if he is going to stay on the treatment but I don't what else there is. Since he is transplant he can do any of studies they have. Well any input would be thankful. Ruth
My suggestion is to give him something to do --- within his capability... Something that can earn money --- because to me it sounds like he is bored --- and he needs to feel like he is accomplishing something -- but may not be able to do so --- which may lead to more depression.
Find him something --- whether it is a hobby --- or collection --- or something that he can do during the hours he is bored --- or during the time he cannot sleep....
And if it is something that can make some money - FABULOUS!
Maybe he could EBAY --- yanno? Have you ever tried that? A lot of home bound folks go to Garage sales -- and then go EBAY the items --- and they make good money at the very small part time work.
I dunno if it really works - but it would give him something to do --- and something to look forward to every day.
Much luck to you.
As far as energy --- some of us have it - some don't.... But 72 weeks is an amazing amount of time -- and 77???? Wow!
Meki
And I must agree that standing up for 10 minutes to do the dishes, is much more exhausting than doing that. Vacuum cleaning is totally out of question. I can fold a little wash now and then. And I have only been treating for 15 weeks so far.
My hubby doesn't care that he also has to do most of the housework. He just does it, never one word of complaint. He is on tour a lot these days, so he doesn't even get to relax much, when he comes home. He comes home exhausted, often to my pile of dirty laundry and takes care of the whole lot. My son also helps of course, he takes care of me when my hubby is not there, the shopping and his own laundry etc. Sometimes he does ours too. This weekend I was so happy, because I was able to cook for my hubby for a change. I think I married and angel and I am forever grateful for the love and support I receive.
Some people can do all kinds of things like go to work etc on treatment, but there are also people like us, who are practically good for nothing, not even a daily walk.
I hope you and your husband will be able to find a good balance. I know it must be hard for you, as I have cared for my ill mother, who had leukemia. I also bathed her and fed her at times she was not able to do that.
But when one feels like this, one cannot force oneself to do something which is physically impossible. I'm just speaking from my own experience, but I find it almost impossible to do things which involve having to stand up for a while or sit up for longer periods of time. My body tells me when to stop, and I can feel that if I would push it a bit further, that I would collapse. It has happened several times, and it is a scary experience, when your legs just go. So one learns to read the signals, before it happens. I will either head straight to my bed, a couch, or sit or lie down on the floor, wherever I am. This is just a little description of my symptoms, maybe this is how your husband feels, too. Men are often not too good at communicating exactly how they feel. I have told my husband each and every feeling I have and how it feels in my body, the creepy crawly feeling of the meds all over the body even in the brain, feeling half dead half alive at times... The whole thing can be kind of creepy and gross and disgusting on top of this amazing weakness of the body. So even though my hubby cannot feel it, he can kind of imagine a whole lot of it. At times he was trying to get me to go for walks and realized afterward, that it had been a bad idea, unless I suggest myself to go out. Not worth the hours of exhaustion and pain afterward...
I hope this helped a little.
I wish you the strength to go through these difficult times. You might need to go and get a massage or spa treatment once in a while, because this is a very difficult time for you as well. Some relaxation and pampering usually helps to give new energy and make you feel better.
All the best,
Marcia
I remember when my mom was so ill and I was of course taking care of my 5 kids, being a single parent. After 1 1/2 years of this, there was a time where I knew that if I didn't get away, I would just collapse. So I talked to my mom's hepatologist and we decided to admit her into hospital until I would come back. I was able to recharge my batteries and go through the last few months, where I had to be the strongest. It is amazing how much strength I was able to gain during those 10 days.
Warm thoughts to you. You are truly blessed with patience and compassion, being such a loving wife!
Marcia
You have had your hands full in your life and I give you alot of credit. I hope God will Bless my husband and all who have this disease so we can all live life the way it was meant to be lived.
I also was wondering if you know what happened to Kristina? She always had an encouraging word to say.
I hope the best to you also, Ruth
Trinity
She eventually left him, she felt used, I think for some it is a rote response, sad.
Hang in there Ruth, Find a hobby, be firm about your needs, You deserve a break sometimes as well.
LOL from what I can remember it is the most energy sapping, sleep inspiring, sweat inducing thing known to man if it's done correctly that is and sometimes..........you don't even have enough energy left to make your man that sandwich now do ya? ;) ;)
but then again maybe it's changed since my last experience, what would I know.
--------------------------------
You mean more then 10 seconds??? YIKES
seymour B
Marcia
- ten seconds would sound like it would be the max I would have even cared to have HEARD about when my hemo was in the 8 - 9 range let me tell ya that ;)
Sounds about perfect to me :-O