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Migraines & Headaches Community
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Does any one suffer from Daily Migraines that can't get releif from any medication?
by nanhead, Nov 30, 2008 01:25AM
History:
I am a 28 year old female and 6 months ago I got a severe and sudden headache that never went away. After my Family Doctor realized he couldn't help me because NSAIDs and Pain killers did not help me he referred me to a neurologist in July. I have had several different drugs and treatments (maxalt, nerveblockers, etc) that didn't work or made things worse, but for the most part I have had a constant pain every day in varying amounts. I have tried diets to eliminate food triggers as well as visiting other places to change the climate. Currently I am on Topamax and Pamelor which seem to allow me to live a semi normal looking life now. However I am still in pain every day can't do any physical activity and can't be stepped down off the medication. The only thing that did work was an inj of toradol, but it only lasted for one day, and my doctor said it can cause too much damage to my liver and such to be on long term.
Before you ask, MRI, Spinal Tap, Sleep Ap Study all came up clean.
My Question is there anyone else that has ever heard of having daily migraines that don't respond to any Treatments? I feel like there is no hope of ever living the life I did before the headache started.
I am a 28 year old female and 6 months ago I got a severe and sudden headache that never went away. After my Family Doctor realized he couldn't help me because NSAIDs and Pain killers did not help me he referred me to a neurologist in July. I have had several different drugs and treatments (maxalt, nerveblockers, etc) that didn't work or made things worse, but for the most part I have had a constant pain every day in varying amounts. I have tried diets to eliminate food triggers as well as visiting other places to change the climate. Currently I am on Topamax and Pamelor which seem to allow me to live a semi normal looking life now. However I am still in pain every day can't do any physical activity and can't be stepped down off the medication. The only thing that did work was an inj of toradol, but it only lasted for one day, and my doctor said it can cause too much damage to my liver and such to be on long term.
Before you ask, MRI, Spinal Tap, Sleep Ap Study all came up clean.
My Question is there anyone else that has ever heard of having daily migraines that don't respond to any Treatments? I feel like there is no hope of ever living the life I did before the headache started.
Be glad MRI is normal, now we have time to hunt for whatever is causing the headache. Have you notices if anything makes it worse, and what brings it down, if so.
Where in the head is the pain felt? Any relation if any to the periods? How is your eyesight?
Best rgds,
Thomas Antony
I have noticed it is much worse with loud sounds and stress, and I can only exercise for 5 minutes at a time. Also most of the drugs I have been given have made it worse also. Advil, maxalt, naproxen,
Pain: The pain moves. Some times one sided some times two sided. some times at the front of the head, some times at the back of the head, some times at the crown, some times pulsing at my temples. Couldn't sleep for 4 weeks would wake me up with pain constantly.(This is before the neurologist saw me, pamelor is now helping me sleep)
I'm going to ask the doctor to test my hormone levels, but there is no cycle to them, they are the same every week regardless.
My doctor is supposed to be one of the best, but all he does is switch me from med to med.
I've tried acupuncture and herbal remedies, Meditation, Yoga, Magnesium, completely exclusionary diets.
My sister found some tonic that I'm going to try this week.
My eye sight has been diminishing over the past two years, blurry.
I am hallucinating some times (flashing lights and such), but not like the traditional aura that I used to experience when I had migraines as a kid.
1- stop taking pain meds- (eliminate rebound headaches)
2- find and eliminate triggers (food and stress)
3- raise threshold (exercise and topamax)
I didn't take pain meds, for headaches before just advil, witch shouldn't cause rebound headaches because it isn’t a pain med. Also I went on a totally restrictive diet from July 1st through August 7th with no changes to the headache at all. And I exercised regularly before the headaches started.
Whatever you have described doesn't contradict a dx of cervicogenic headache.
Now is the problem. You will be lucky if someone can really diagnose cervicogenic headache and treat it. Until you find someone, try to hold your neck