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30, just been diagnosed with ovarian cancer

by niti_gh, Nov 30, 2008 07:53AM
Hi,

I am 30 and have just been diagnosed with ovarian cancer yesterday. I had a cyst in my left ovary that was removed last week and sent for biopsy. The doctors suspected endometriosis not cancer. The biopsy however detected carcinoma of the left ovary. The CA-125 count was 136 before the laproscopy and a second sample has been sent for test. An MRI scan has also been performed on me to know the stage of the cancer. Both my ovaries are in place right now but the doctors may go for a laprotomy soon. I do not know what is coming my way and what I should expect. I am unmarried, was planning a February wedding. Right now I feel lost.
Member Comments (15)

by Conquerer, Nov 30, 2008 09:29AM
this was found early  behaps for now only one ovary must go.  my friend had four children with only one ovary.  go on with your life and just ask alot of questions.  also if both go get eggs harvast, you have time to make decisions.  some of us had no time stay upbeat it will all work out

by niti_gh, Nov 30, 2008 02:54PM
Thanks Conquerer. May be I am fairly new to this and my doctor absolutely won't say anthing without the MRI reports, I thought I have lost it all. Will wait and watch.

by crecco, Dec 01, 2008 04:22AM
Yes, just hearing the word cancer is about the scariest thing in the world. But it sounds as though your Dr is on top of things. It also sounds as though it has been detected early. Your Dr will advise what he feels best when he gets all of the results back that he needs. As frustrating as it may seem, it is good that he is not saying much until then.
  By all means, go ahead with your wedding! I am sure that at your age, you had planned to have children, and the thought of not being able to is very upsetting. But try to focus on the other side of the coin. If this should turn out to be cancer and they have caught it in the early stages, you will still have your whole life in front of you. You can always look into adoption or as conquerer said, check into getting your eggs harvested.
  What ever happens, keep your hope alive and strong. You can get through this. You might have to make some changes in your life, but you can do it.
  I wish you the best and please let us know what you find out.
    Chris

by niti_gh, Dec 01, 2008 05:43AM
Thanks for all the support Chris. The stage of the cancer should be clear by Wednesday. Unfortunately, post laproscopy the CA-125 count has risen. I will wait for a word from my doctor.

by yrrek, Dec 01, 2008 11:41AM
To: niti
Hang in there and I am sorry to have to tell you that cliche.  It sounds promising that the OVCa has been caught early.  I was DX 1c last Dec.  This year was quite amazing but am doing well.  I was 44 when DX'd, you are young but catching early will hopefully give you options.  Let us know, I am thinking of you.  Kerry

by niti_gh, Dec 01, 2008 12:27PM
Thanks all for giving me hope. God bless you.

by Dee09, Dec 01, 2008 10:18PM
To: Niti
It's terrifying waiting for all the pathology reports and a clear diagnosis.  I kept running all kinds of scenarios in my head that turned out to be much worse than reality.  If you can, take a deep breath (many deep breaths) and try to wait for all the information.  You will be able to get married (I was diagnosed with lymphoma when I was 30 (14 years ago), the week before my wedding.  We went ahead with the wedding, and the treatment, and that cancer has been gone since then).  And remember you're not alone.  

About the CA-125: it's common for the number to go up after surgery so it doesn't necessarily mean anything about the cancer.

All the best.

by niti_gh, Dec 01, 2008 10:35PM
To: Dee
Thanks for the encouragement (14 years sounds really encouraging!). I am seeing an oncologist tomorrow, however the stage cannot be determined until after the second laproscopy. Its scary but I am trying to keep hope...

by CaydensMommy, Dec 02, 2008 12:59PM
Hi! I was diagnosed with ovca at age 26 and have had NED since my surgery in Oct. 2005.I would encourage you to get a second opinion if possible on treatment and on the pathology. Not even all gyn/oncs agree on all specifics of treatment options so you may want to check out another opinion. Also, pathology is an interpretation of the pathologist. I had 4 pathology reports done and not one graded everything the same, and the grade makes a big difference in determining treatment. I will be praying that you have wisdom to make the right decisions....I know that it's a really tough time for you right now.
Praying for you,
Glenda

by Pat4444, Dec 03, 2008 05:02PM
To: Niti
I was diagnosed in August and alll that got me through the first month was a conviction that God was right next to me. I would approach panic and think "But God is here, right on my side" and calm came. I am not particularly religious but the image helped.

The good news for you is this sounds early and once you get the info and see the oncologist and a plan, it is immensely reassuring.

Things have changed, for the better, for this cancer, amazingly so and just hang in, one day at a time, have friens to talk to and support and take care of yourself and you will be amazed at the hope and the possibilities.

And keep God or whoever your being is right by you!!!! Pat

by tiffers40, Dec 04, 2008 09:30PM
To: niti_gh
I am so sad to hear about your situation - especially with just planning a wedding.  But your health is so much more important and you have to get your ovaries out if you do in fact have ovarian cancer.  You will need to see an gynecological oncologist as they are the best at taking care of gyn cancers.  But, my understanding is that a MRI isn't going to tell you your stage of cancer.  You need to have surgery to have your lymph nodes and washing biopsed in order to see if your cancer has spread. I hope you are following up with someone who specializes in ovarian cancer. What you should expect depends on your stage of cancer which can only be decided when you have the surgery to remove your ovaries and look around at your other organs and lymph nodes.  I made it through and although it looked bad was only staged 1.  Never lose hope and always keep fighting!

Tiffany

by niti_gh, Dec 10, 2008 06:27AM
To: All
Thank you for the encouraging remarks. I did take a second opinion on the pathology reports and the reviews were good. Got rid of the infected ovary on Monday - waiting for the biopsy results from the second ovary and the uterus. The peritoneal wash came clean... So far so good.
God is by me, I hope this monster is curable. If I am IA, how good are my chances and what do I need to remember?

Keeping you in my prayers...

by shewrites, Dec 10, 2008 09:35PM
To: niti_gh
I'm a 1A --  diagnosed, complete hysterectomy and 6x chemo in 2002.  The doctor promised me a cure and I always tell him I'm holding him to it.   I gather that the statistics are very good (in the range of 95% survival) for 1A, which is encouraging for me and, I hope, for you.  

I understand that my doctor is considered "aggressive."   Not every 1A has complete hysterectomy or chemo.  But I'm older than you and so the hysterectomy made sense, and so did the chemo.

Certainly, get the doctor's advice about having a child -- or saving your eggs so you can use a surrogate.   A lot of women on this forum would advise you to have a hysterectomy